Summertime with ASD and OCD

Summer is never simple with a kid with special needs. With Jonah, there were sports camps and town camps and science camps and music enrichment. All sorts of opportunities for him to grow and prosper and keep out of my hair. With Ian, there are very, very, very few options. Almost none of those places take kids with special needs. If they do, it’s with a grimace and raised eyebrows and nose holding.

After I dropped off Jonah at the local YMCA this morning, I drove past the town recreation camp. All the little kids gathered in the shade with matching t-shirts. They were getting ready for swim lessons at the town pool. There were no kids in wheel chairs. No spacy kids being trailed by aides.

After a couple of seconds of anger and bitterness where I contemplated discrimination lawsuits and imagined firy speeches before the town council, I moved on. At least, I have a place for him this year. In the past, he went to extremely lame special education summer schools. Schools are obligated to provide special ed kids with programming in July, but they do a crappy job of it. This year, they wanted to shut Ian up in a classroom for half a day with two lower functioning kids where they would do math worksheets all morning. He would be stuck with me for the rest of the day. Other kids get to have fun, why doesn’t my kid get that?

I went back and forth with the school district about the inappropriate-ness of their summer program. I was fighting with them about it up until the last day of school. We were fighting it out on my cell phone, while I was at the doctor’s office getting Jonah’s wrist bone set in a cast.

For the first time in his life, Ian is at a regular camp. He has a shadow that helps him out as he makes art projects and takes swimming classes. He is around typical kids. He’s active and busy between 9 and 4, every day for four weeks. It’s a pain in the ass to get him to this camp. 4 hours per day of driving. But this was the closest place that I found.

And it’s worth it. Not only is Ian getting his fair share of fun, but he’s growing so much more than if he was shut up in a sad classroom. All that physical exercise is good for his brain. He has to deal with change. He is surrounded by people who are chatting with him. He’s a little stressed out with the heavy demands (he keeps biting holes in his t-shirts), but he’s doing it.