When Ian had the 48-hour EEG, they found that he was having one-second seizures every two hours. They were so small that there were unnoticeable to observers. He doesn’t even blink when they happen. Those little seizures have to be treated with medication, because without treatment, they start adding up to bigger ones, like happened in November.
The concern was that his seizures were happening on both sides of the brain. Most people with epilepsy tend to get them on one side or the other. So, that’s why the neurologist ordered the brain MRI and was worried.
Epilepsy is a very common problem for people with autism. Something like 30-50 percent of people with autism, also end up with epilepsy down the road. It’s a genetic thing. Just the same, it was necessary to rule out a physical issue, since his EEG readings were so unusual.
It took four days to get the results, in which time I imagined the worst. I didn’t want to be blindsided like I was last month with the epilepsy diagnosis. I wanted to imagine the worst, make peace with it, before walking into the doctor’s office.
I feel like I’ve had a seizure. My brain is wiped clean. I haven’t even been answering email this week. I’ll be back on Monday. I’m working on article today and that’s about all I can handle.
The pain and stress that parents of truly sick kids have to manage is unthinkable. My thoughts are with them this morning.
Hug (or call) a loved one today.